Bone Marrow Donation

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Bone Marrow Donation

Unread postby kenzie_matt » 21 October 2019, 11:19

Disclaimer: By no means do I claim to be an expert on this matter, so please leave the pitchforks at home. It is merely a question I have.

On Friday I found out that my friend has been diagnosed with Leukemia. She had found out two weeks earlier, but kept it quiet whilst coming to terms with it. She only told a few of us because she had to go for her first chemo session. I saw her on Saturday and had to muster every bit of will power I possess to keep it together.

Anyhow, I digress. We got to chatting and she explained about the treatment plan they have for her at the moment. Friday was the first of a potential six treatment sessions. If they don't work, the next step (as she explained it to me) is that they will use radiation to kill off all her bone marrow to try and get rid of the Leukemia. The odds of survival are slim, so we pray it does not get to that point.

During the conversation she mentioned that she is O Negative. I am as well. I told her that if there is anything I could do to help (support or otherwise) she should let me know. If it gets to the point that she would need a bone marrow transplant, I told her I'm first in line to see if I am a potential match.

Due to our conversation, I spent the rest of the day with the following internal struggle: I am willing to donate marrow to my friend if it would help, but I have never made that offer for a complete stranger. Should one sign up to the national registry in the event that you could help save someone's life? Is it worth the risks involved? From the bit of research that I have done, you would go to hospital and be put under anesthetic for them to harvest the marrow. You get discharged the same day, but there are certainly risks with anesthetic regardless.

What do you think? Is this internal "struggle" worth it? Should we all sign up to help?
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Re: Bone Marrow Donation

Unread postby Brenden » 21 October 2019, 11:41

A bit off-topic, but your friend should start taking a high dose (several grams a day) of curcumin (the main compound in turmeric) combined with piperine (the main compound in black pepper, which seems to aid absorption of curcumin as well as be beneficial itself) ASAP. There is some evidence that it helps the effectiveness of chemotherapy, and some (albeit weaker) evidence that it fights cancer itself. I even read of one lady with leukaemia who, after her doctors had ended other unsuccessful treatments, went into remission using only curcumin/piperine (but of course that’s just one case).
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Re: Bone Marrow Donation

Unread postby Botanical Boy » 21 October 2019, 11:48

First of all, I'm so sorry to hear that your friend is afflicted with an illness like this.

I don't know the ins and outs of it just like you however it sounds somewhat similar to giving blood to me.

Fingers crossed for your friend that it won't get to the stage where you are having to do so but if you feel like registering, go for it. :)
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Re: Bone Marrow Donation

Unread postby Marmaduke » 21 October 2019, 11:56

I think if you’re worried about the risk associated with anaesthesia and hospital infection, and that’s all that’s standing in the way of you doing this, then it’s something you should push through. Statistically speaking, the risks on either front are very very low. You probably do things statistically riskier to your health every day. And that’s just a general overview, if you narrow is down to occurrences in outpatient treatments then the risks are substantially lower still. Even if those risks do cause you complications, or infection, you’re already in a hospital and the risks are predictable and accounted for.
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Re: Bone Marrow Donation

Unread postby kenzie_matt » 21 October 2019, 13:10

Brenden wrote:A bit off-topic, but your friend should start taking a high dose (several grams a day) of curcumin (the main compound in turmeric) combined with piperine (the main compound in black pepper, which seems to aid absorption of curcumin as well as be beneficial itself) ASAP. There is some evidence that it helps the effectiveness of chemotherapy, and some (albeit weaker) evidence that it fights cancer itself. I even read of one lady with leukaemia who, after her doctors had ended other unsuccessful treatments, went into remission using only curcumin/piperine (but of course that’s just one case).

Thanks for this Brenden! Will mention it to her when I see her again.

Botanical Boy wrote:First of all, I'm so sorry to hear that your friend is afflicted with an illness like this.

I don't know the ins and outs of it just like you however it sounds somewhat similar to giving blood to me.

Fingers crossed for your friend that it won't get to the stage where you are having to do so but if you feel like registering, go for it. :)

Thanks, Botanical Boy. I appreciate the support :)

Marmaduke wrote:I think if you’re worried about the risk associated with anaesthesia and hospital infection, and that’s all that’s standing in the way of you doing this, then it’s something you should push through. Statistically speaking, the risks on either front are very very low. You probably do things statistically riskier to your health every day. And that’s just a general overview, if you narrow is down to occurrences in outpatient treatments then the risks are substantially lower still. Even if those risks do cause you complications, or infection, you’re already in a hospital and the risks are predictable and accounted for.

Thank you, Marmaduke. For her I would honestly do it in a heartbeat, no question. If it comes to her needing the transplant, I'll definitely volunteer. If I'm a match, I'll give as much or as often as I can.
Was more wondering about being on a registry in general for the country. I imagine they would take your details and create a profile. If someone needs you and you're a match, then they contact you to come and donate. At least this is how I imagine it works.
So I guess I'm questioning my moral fiber, as it were. Would I do this? Or only for people I know and care about, like my friend.
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Re: Bone Marrow Donation

Unread postby Marmaduke » 21 October 2019, 13:30

kenzie_matt wrote:
Brenden wrote:A bit off-topic, but your friend should start taking a high dose (several grams a day) of curcumin (the main compound in turmeric) combined with piperine (the main compound in black pepper, which seems to aid absorption of curcumin as well as be beneficial itself) ASAP. There is some evidence that it helps the effectiveness of chemotherapy, and some (albeit weaker) evidence that it fights cancer itself. I even read of one lady with leukaemia who, after her doctors had ended other unsuccessful treatments, went into remission using only curcumin/piperine (but of course that’s just one case).

Thanks for this Brenden! Will mention it to her when I see her again.

Botanical Boy wrote:First of all, I'm so sorry to hear that your friend is afflicted with an illness like this.

I don't know the ins and outs of it just like you however it sounds somewhat similar to giving blood to me.

Fingers crossed for your friend that it won't get to the stage where you are having to do so but if you feel like registering, go for it. :)

Thanks, Botanical Boy. I appreciate the support :)

Marmaduke wrote:I think if you’re worried about the risk associated with anaesthesia and hospital infection, and that’s all that’s standing in the way of you doing this, then it’s something you should push through. Statistically speaking, the risks on either front are very very low. You probably do things statistically riskier to your health every day. And that’s just a general overview, if you narrow is down to occurrences in outpatient treatments then the risks are substantially lower still. Even if those risks do cause you complications, or infection, you’re already in a hospital and the risks are predictable and accounted for.

Thank you, Marmaduke. For her I would honestly do it in a heartbeat, no question. If it comes to her needing the transplant, I'll definitely volunteer. If I'm a match, I'll give as much or as often as I can.
Was more wondering about being on a registry in general for the country. I imagine they would take your details and create a profile. If someone needs you and you're a match, then they contact you to come and donate. At least this is how I imagine it works.
So I guess I'm questioning my moral fiber, as it were. Would I do this? Or only for people I know and care about, like my friend.

Well if you’re considering it, it’s basically just a reverse-injection. You’re anaesthetised and a very big needle is driven into your hipbone to harvest cells. You’re only anaesthetised because it would be acutely painful to perform the procedure whilst you’re awake, not because it’s a dangerous or particularly involved procedure.
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Re: Bone Marrow Donation

Unread postby Eryx » 22 October 2019, 02:34

I would donate, but Brazil is kind of weird about gay people giving blood and parts to other people. They basically only harvest LGBT people's organs after they die, to donate blood I have to lie. So I don't think I'm up to go through the hassle of doing it currently.
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Re: Bone Marrow Donation

Unread postby mxguy01 » 22 October 2019, 03:41

Eryx wrote:I would donate, but Brazil is kind of weird about gay people giving blood and parts to other people. They only harvest LGBT people's organs after they die, to donate blood I have to lie. So I don't think I'm up to go through the hassle of doing it currently.


Well the Red Cross follows FDA recommendations and as a result gay men are pretty much not welcome to donate blood. So same here.
https://www.fda.gov/regulatory-informat ... -and-blood
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Re: Bone Marrow Donation

Unread postby kenzie_matt » 23 October 2019, 06:48

In South Africa we weren't allowed to donate either. Whenever you donate you have to fill in a questionnaire and some of them pertained to gay sex. It was ruled unconstitutional as it discriminates based on sexual orientation, so they removed the offending questions :D
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